Each year, Ultragenyx hosts Rare Family Day in honor of those living with rare and ultra rare diseases.

Please join us this year for a Rodeo-themed day of music, live animals, food, games, refreshments – and to meet people dedicated to working on rare disease treatments. There is no cost to register for this event and children are encouraged to attend!

Registration Deadlines

• Patients & their families with travel stipends 
  Thursday, August 28, 2025 (Deadline has passed)
   
• Patients & families without travel stipends
• Attendees & Employees
  Friday, September 26, 2025 

Ultragenyx
📍 60 Leveroni Ct, Novato, CA 94949

This is an outdoor event, and there won’t be any indoor space available—except for individuals who may need a quiet room for personal or sensory needs

11:00 AM - Food, Games, & Activities Begin

1:00 PM - Presentations

2:00 PM - Entertainment, Live Music

3:30 PM - Buses Depart (Travel Stipend Recipients)

4:00 PM - Final Farewell

Anyone who would like to attend is welcome!

Please register everyone in your group that will be attending.

Event team: RareFamilyDay@blineevents.com