Join us at the Ultragenyx Return of the Rare!
Each year, Ultragenyx hosts Rare Family Day in honor of those living with rare and ultra rare diseases.
Join us this year on Saturday, October 3 for a Galactic-themed day of music, food, games, refreshments – and to meet people dedicated to working on rare disease treatments. There is no cost to register for this event and children are encouraged to attend!
Registration
Registration Deadlines
Thursday, August 27, 2026
✦ Patients & their families with travel stipends
Friday, September 25, 2026
✦ Patients & families without travel stipends
✦ Attendees & Employees
Location
Ultragenyx
📍 60 Leveroni Ct, Novato, CA 94949
This is an outdoor event, and there won’t be any indoor space available—except for individuals who may need a quiet room for personal or sensory needs
Schedule
Saturday, October 3, 2026
11:00 AM - Food, Games, Activities & Music with DJ Umami
1:00 PM - Presentations
2:00 PM - Group Photo for Travel Stipend Patients & Families
Immediately following presentations
4:00 PM - Buses Depart (Travel Stipend Recipients)
5:00 PM - Final Farewell
Bring Everyone!
Bring your friends and family, they are welcome to attend!
Please register everyone in your group that will be attending.
Questions?
Event team: RareFamilyDay@blineevents.com
